When the World Health Organization (WHO) declared the coronavirus outbreak to be a Public Health Emergency of International Concern in January 2020, The Global Health Network immediately set up the COVID-19 Research Implementation and Knowledge Hub. The aim of the Knowledge Hub is to ensure that research teams can find the support, tools, resources and guidance that they need to aid their studies during this rapidly evolving situation.
Following the successful webinar on data management and data sharing, EACCR invites you to this new live webinar organised by EDCTP and TGHN focusing on the tools and guidance available in the Protocol Development Toolkit on the EDCTP Knowledge Hub, to support the development of high-quality health research protocols.
There has always been a challenge on collaborations and strategic partnerships can harness the power of data. Further more a question is asked how they can use the data to tackle the most devastating health issues.
The COVID-19 pandemic has highlighted the critical importance of generating rigorous evidence for decision-making. To bring equity the global health research community needs to find ways to equitably unite and generate actionable insights from data.
Expectation from health research funders, regulatory agencies, and journals for sharing of de-identified individual-level health research data is now increasing.
Arguments in favour of data sharing include maximising the utility of the data, improving research transparency and allowing confirmation of the interpretation of results, with the overall goal of improving science and health. However, the volume of data shared remains low. This has been partially attributed to lack of data management capacity and lack of knowledge of how and where to share data.